So last night, Tuesday July 20th was officially Day 1, Day 0 being on Monday night. It's really weird how they do that, I don't quesiton it I just go along with it. He was in a great mood all day! Playing with all of his toys and just enjoying himself.
Mid afternoon one of our good friends from Speech Therapy came up to let us know that she tought it was safe to try some solids again. Keegan has not had solids prior to his hospital stay in May. During his last swallow study he aspirated on eveything but a bottle with rice ceral in it.
When the therapist gave us the okay ,we immediatly went down to the playroom and snatched up a highchair to use. We started off with squash....not too thrilled,I think its gonna take him awhile to get used to solids again-which bums me out-We had gotten so far! The stint in the highchair quickly turned into play time when we found out he wasn't that hungry but boy did he want to play.....
We got a call late afternoon that we had a room at RMH, THANK GOODNESS! We only had to spend one night in the parent lounge! Around 7ish a surgeon came in the room and let us know that yes, our request to have a button placed in Keegan's belly instead of the big ole G-Tube was to be granted the next day. I am so excited, we won't have a large protrusion in his clothes anymore and one less thing for him to tug and pull at.
Chemo time is 9 pm sharp.......Etoposide, Cyclophosphamide, and Mesna were started. Same drugs, same routine as round 1. Etoposide and Cyclophosphamide being the chemo and mesna being the bladder protectant from the harsh chemicals.
Ryan stayed the night with him while I went to RMH took a Luensta and went to night night land. Ry said he slept fairly well (as compared to home where he seems to be waking up twice a night with night terrors.)
On to Day 2 with a vengence!