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Where in the heck are the updates? Well I got kinda behind and for the life of me can't actually remember what happened on Tuesday and Wednesday, hospital time is all kind of a blur. Some days go incredibly fast and some seem to drag on till next Tuesday.
We are officially DONE with the Drugs for the first round of chemo; however, we are waiting for all of his number to drop, which they are in the process of doing right now. Every morning his blood is drawn to check levels. This morning he had virtually NO immune system. He is getting antibiotics via IV every couple of hours along with benadryl because the one antibiotic he is on causes "Redman's Syndrome" which in layman's terms is red rash.
He if vomiting about once a day but Doctor Shiyh is not too worried about it. He is not really gaining weight so as of today he is being moved to 24 calorie specially mixed formula by the pharmacy. I am really surprised at how well he is taking this. I want to be able to tell him what is happening to him and why but maybe its better this way. He doesn't know how to react because he doesn't know what he is really fighting so he just goes on fighting!
He is such a strong little guy. It seems like every day now he is learning to do something different. He can now turn his head back and forth in both directions when laying on his back -HE COULD NEVER DO THIS BEFORE! He reaches for toys and grabs them and he has learned to hold bottles all by himself! We are making leaps and bounds in development! I am so happy and so are his therapists!
As of right now he is running a slight fever, Keegan usually runs in somewhere in the upper 97's but when our night nurse took his temp at 8ish it was 99.1, so up for him most definitely. We also think he is getting Mucositis which is a side effect of the Methotrexate. I will keep you updated on that as the story develops.....
Anyway I am off duty for the night relaxing at RMH and took some Benedryl to fall asleep, so its off to dreamland my friends...hopefully we get some more good news tomorrow!
Thursday, June 10, 2010
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I'm glad it seems there are at least as many ups as there are downs right now. Congrats on his milestones :) And while it's the least of your worries, my sympathies on the Redman's Syndrome - I developed it when receiving IV antibiotics while in labor, and I know it's no fun. Keeping your family in my thoughts!
ReplyDeleteGlad to hear about the new milestones! Hope things continue to go well. I know how the days can all run together.
ReplyDeleteWe'll be at Riley on Tuesday the 22nd. Let me know if you want to meet up :)
Thank you for your update Beth. Keegan is a Strong little guy and a good fighter from what it sounds like. We are happy to learn about his milestones.. We are keeping up on this end as Keegan's Prayer Warriors! Especially the kids! We pray EVERY NIGHT for him and all of you! Looking forward to hearing more great news!
ReplyDeleteGrosz Family in Massachusetts