Its Tuesday June 1st, D-Day in my mind. Today is the day we are starting our chemo treatments. I can not describe in words how scared yet happy I am. I know that sounds VERY odd but I am so scared where this journey is taking us, the unknown has got to be one of the scariest things on this god given earth; yet I am happy to get this show on the road. The last 3 weeks since we found out about the tumor all I wanted to do was get this thing started to keep it from coming back. Now is finally the day and I am scared myself and for my little baby. I am scared at how sick he could get, I am scared for what all these "poisons" will do to him and I am scared for the fight.
So today starts day zero of a very long journey. I am going to try to update everyday as to what drugs, side effects and feelings are happening, I may even upload an adorably cute picture as long as he is feeling up to giving me that $1000 smile :)
Day 0-6/1/10-IV of fluids started, needs to be running for 2 hours before they will start the first round of chemo. He seems happy and is still smiling and giggling. Right now they are running yet another hearing test on him for a baseline study. We are then being admitted to the hospital on the Hemoc floor where we will remain for a month or more.
A little before 9:45 on day one the nurse came in and gave Kee anti-nausea meds, one of the chemo drugs given tonight has a side effect of nausea. Right after that ran through his central line she started him on Vincristine , it lasted approximately 15 minutes, then she flushed it with saline and began running the scarier of the two drugs Cisplatin. He will be on Cisplatin for 6 hours through the night. Then off drugs, except IV's all day tomorrow and start another round tomorrow evening around the same time.
I called the Chaplin in to say a quick prayer before chemo started but I guess he/she was off somewhere else cause the never answer the page; they best not show up here at 1 am when I am finally trotting off to sleep and Keegan has been sleeping for hours..
**On a side note, while we were waiting to be admitted Keegan did manage to pee through his diaper onto my crouch and made me look like I peed myself. It was quite lovely....thank goodness for black gauchos. Oh and I still have not changed because the boxes of my clothes are still in the car. THANKS :)
Tomorrow is a new days, lets see what is in store......
And ate dinner with momma!
Today was a good day, I know they all won't be like this but it sure would be nice, you can hardly tell he is a cancer patient!
Day 2-6/3/10-Today started our REALLY bad. I fed Keegan about 6:30 am and almost immediately it all came back up. I am not a big fan of puke but really when it's your own kid it doesn't matter all that much. After we got him all cleaned up mommy waddled her puke covered self into the glass elevators, down through the main atrium and out to a car where Ry was waiting for me. I drove back to RMH, promptly took a shower and then decided it was nap time; you see Mrs. Snorey McSnorester I was talking about got worse and worse through the night. I finally had to turn on the movie Footloose but every time a song would come on I would find myself waking up and singing it.
Keegan threw up one more time today, so they ordered up some more anti-nausea meds and we continued on through the day. Aunt Abby came to visit. He slept alot today but Aunt Abby did get some cuddle time! Abby and I also decorated his room all beautiful like (and if you want to send anything else to decorate his room with please do, we could always use a change-we are here for awhile!).
Chemo again started at 10:00 with more anti-nausea meds given a half hour before. He was on the same drugs as last night, Etoposide and Cyclophosphamide. He also has to get Mesna for the next 24 hours to protect the lining of his bladder. It's getting a tad (teenie tiny) bit better every night when the hang the chemo, not as hard as the night before, am I getting used to it already?
Tomorrow he will get a catheter and some different kinds of chemo....on to day 3....We Charge ahead with vigor....
OHHHH btw the Governor was on the floor yesterday visiting a patient-whohoooo!