Friday, May 21, 2010

Today is a Good Day

So this morning, we got up, got ready and guess what folks???? I put make up on for the first time in over 2 weeks!!! I know shocking right? I just felt like it would help my day be a little brighter, and while the sun IS NOT shining here in Indianapolis, I feel okay.

We went and picked up a few groceries at Meijer last night for our little bin in the Fridge but this was only after Keegan came back from surgery and was resting peacefully. Surgery went well. It was his fourth in just over a week; but he is becoming a pro. Dr. Ackerman installed a new shunt and cath on the opposite side from where it had been. She didn't want to get anywhere near his newly placed G-Tube in fear of contamination. The new shunt is a lower profile and will not be messed up when he has MRI's or other magnetic type testing. We even got to hold him today since the shunt is now internalized-YEA!

He seems to be getting  little stronger everyday although he is cutting teeth in the midst of all this so that doesn't make for good days.

We just got great news that we will be moving out of the ICU today and onto another unit. This is great news because it means we don't need the more intense monitoring we have had for the last week and a half but sad because we have to go back to the developmental team that "failed" us in the beginning. Oh well, now I know we must just speak up when we think something is not right.

Oncology just came in within the last 30 minutes gave us paperwork on the type of chemo that Keegan will be receiving and explained the process to us. She said they are going to start the inpatient chemo on June 3rd. Dr. Ackerman wants to give him a chance to recover from all his surgeries before anything is done chemo wise.

So today has been a good day, NOW with that said, it is only 2:30 and he has not had his swallow study yet and has not been moved to his new room, so we shall see.

With that,
 Beth Out.....


  1. So glad the surgeries have gone well! Good luck on the new unit.. trust your instincts, they've served you well in the past. He's going to get through this!!

  2. glad everything went well! i LOVE the picture of him reaching out to touch your face! hope all goes well at the new unit. everything will be okay!

  3. Yay for a good day! I am so happy he is getting stronger. We're praying for him and y'all are constantly in my thoughts. I love the pictures. *hugs*

  4. I just wanted to tell you that I can relate on so many levels to practically everything you've just been through. Reading through your past few days posts made me cry all over again. So much of what you guys are dealing with, we've dealt with too. I wish you guys the best of luck with chemo. I remember May 9th, 2008 all too well, the day we found out about our son's tumor -- I couldn't imagine we'd be here two year later, through 1.5 years of chemo, 12 surgeries, and tons and tons of therapy, but thank God we are still moving forward! I will keep you guys in my prayers!

    Samantha Crane

  5. Keegan is so beautiful and even more-so with you holding him in your arms!
    This little guy is strong because of you two and will continue to be and god will continue to give you the strength you need as all your friends, family and fellow blog family pray.
    Our whole family is praying for that miracle and guidance, wisdom and knowledge for all those that are caring for Keegan.
    Hugs to all of you and we are praying for Team Keegan!!

  6. I am so glad you moved out of the icu!! AND you got to hold him! Hopefully the news just continues to get better and better. Continued prayers!

  7. I just came across your blog from a button on another blog and I just wanted to tell you your story has truly touched my heart pretty much brought me to tears reading through past posts. I will keep your family in my prayers and look foreward to reading updates as your strong little man keegan fights on!!


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