Friday, October 21, 2011

Unimaginable

We had our 3 month MRI yesterday. I would like to report that it was spectacularly clean, not a tumor that lit up. I would like to tell you that we danced out of the oncology unit with a "see you a 3 months" and were off to The Cheesecake Factory to celebrate.

But, that is not how our day turned out. We had the scan done and were up in the Oncology clinic by 11am. We were put in our room and told Dr. Shih would look at the scans and pop in to let us know what the preliminary results were. After waiting for about 30 minutes Dr. Shih enters our room along with our nurse practitioner Jayne. I knew by the looks on their faces that it wasn't good. Dr. Shih pulled up the trash can while Jayne sat in the rolly chair. As soon as they got settled in our Social worker joined the talk.

Keegan's latest MRI showed the cancer is back and worse than ever. Instead of just one tumor in his brain (original diagnosis) and the one in the spine, his brain and spine are covered in tumors. Simply put there is nothing more for the doctors to do. The cancer is winning. Dr. Shih told us we have been weeks and months left. He put him on two chemotherapy drugs that will have minimal side effects will giving us quality time.

So we left the clinic with instructions that HOSPICE would be calling and setting up our meeting. We left with a big void and broken hearts. How is my 2 year old only given weeks to months to live? I dont understand.

38 comments:

  1. what unimaginable pain. i am so sorry.

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  2. I don't know even what to say. Unthinkable. Sending Keegan, you and the rest of the family tons and tons of hugs and prayers. Thinking of you. I am so sorry.

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  3. Hi Beth,
    I am so, so sad and sorry. I have never met you three but your sweet son has my heart. I cannot imagine your ache. Please do not give up in prayer. God is bigger than cancer and, if it is in accordance with His will, He can remove this cancer and restore Keegan. This is my prayer and what I am asking of God, heaven here on earth.

    Take him to God centered healing places, there are many around. I have heard of mass cancers just disappearing. Keep pressing in.

    We know for sure one day Keegan will be healed, but lets continue to ask God to heal him here on earth.

    Praying and praying for sweet Keegan.
    <><

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  4. Beth,

    We have no words. Just love & prayers.

    Joanna, Clint, Madison & Hannah

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  5. Wow, I can't tell you how sad I am for your family and your precious boy. It is just unimaginable to hear this after all the fighting and courage you've displayed and all that this little guys has endured. Many prayers are being said in Keegan's honor. Sending love and support from strangers in Florida who have such respect and love for your family.

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  6. You're in my prayers, as always. Giving you strength and courage too. All of which you already have, but I really have nothing else to give.

    If anyone can enjoy week... or months.... its a 2 year old

    Erika

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  7. I am, so sorry. Precious Keegan does not deserve this, no child deserves this. I am sorry, I'd like to say that I wish they would be wrong and you could wake up from this nightmare but I know that won't be the case. I am just so very sorry, and I know you will cherish every second with him.

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  8. I have no words, I am so sorry. I am praying for you and little Keegan.

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  9. I'm so sorry. My prayers are with you.

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  10. There are no words. I am so sorry. I will keep your family in my prayers.

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  11. There are no words... but we are thinking about you and praying for you all. God bless.

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  12. I am so, so very sorry to hear this. I can't even begin to imagine what your going through and your family is in my thoughts.

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  13. This is a prayer for the healing and remission of cancerous tumors. May God hear our prayers for healing. In Him, all things are possible.

    Heavenly Father, I come before you with a
    solemn heart and in need of your intercession.
    I pray that the cancer that has come into Keeegan’s life will disappear and soon fade into a quick remission. I believe in Your capacity for miracles, and ask for this on Keegan’s
    behalf. As we grow older, I know we become closer to the day you accept us back into Your kingdom.

    I ask that you delay that holy union if it be Your will. In Jesus’ name I pray, Amen.

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  14. My heart weeps for you and your sweet sweet boy once again if I can do anything for you Just say the word !!!!!!

    Heart hugs Ivy

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  15. This is definitely not what I was hoping to read today. I will continue to keep Keegan and family in my prayers.

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  16. Words can't say how sorry I am. We will be praying for your family!

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  17. Dear Beth and family,

    I don't even know you and I'm devastated by this news. I can't even begin to imagine what you and your husband are going through right now. My thoughts and prayers are with you and Keegan. May you create many happy memories together in the coming weeks and months.

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  18. Beth. Truly, I have no words. When you get a chance to catch your breath, please send an email and let me know what I can do to help. May your days be filled with peace and love. We are praying for your family, my dear.

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  19. I don't understand either. And I wish I had words that could offer you comfort. Please know that I'm thinking about your family and praying for your boy.

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  20. Beth, I am at a loss for words. I've followed Keegan's story since before you had him. I am so very sorry you and your family are going through this. Enjoy what time you do have with precious Keegan. Please know that I think of you guys often and pray for your strength daily.

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  21. My heart is breaking for your family. I wish I had words for you but just have faith that God will be with you throughout this. I'll be praying for a healing within Keegan and that the cancer will be gone.

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  22. I am so saddened to hear this. Many warm thoughts, prayers and virtual hugs your way. Jill @BabyRabies

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  23. Dear Beth, I came here via Jill of Baby Rabies. I am so sorry for this news. My heart aches - mother to mother. "I am praying" feels not enough... yet I am. I wish there were words that existed to express the depth of my heart for you and your family... continued prayers and thoughts...

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  24. I am sorry that after all the fighting and Chemo/radiation that there is nothing left to do. Enjoy your sweet boy, love him everyday you have left! You are in my prayers every day! God does perform miracles! Keep Praying!

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  25. We have never met but I have followed your blog for a while and my breath was taken away when I read this post. I cannot imagine what you thoughts and feelings must be at this time. I am praying for Keegan and your entire family.

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  26. I have never posted here but want to send you love and healing for your heart. Our family went through tumorsof the neurological system in our 2 year old over 15 years ago now) but thankfully it never manifested as horribly as with your family. I wish I could do something but all I can do is send my unending love ... to you ... to Keegan ... if you need anything ... please reach out at anytime.

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  27. Dear Beth,
    I cannot even imagine what you and your family are going through. I am so sorry to read this.I was hoping and praying for Keegan and you every day, since I first read your blog over a year ago. Your son's story has touched my heart - and I would have loved to read some good news. As others have written already, enjoy your beautiful and brave little son. Give him all the love you can give, everyday you have left.
    I keep thinking and praying for you.

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  28. oh, Beth. Prayers for the peace that surpasses all understanding, because this is something we cannot fathom, cannot imagine, cannot understand. Peace, my friend.

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  29. Beth,
    I can't imagine your heart ache right now. But know that I am praying, and that I am praying for miracles. Our God is bigger than this, and my prayer is that Keegan will be healed. Hugs and prayers to your family

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  30. Praying for you guys and that sweet, sweet boy.

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  31. Beth I am so sorry to hear this. I have been quietly following your story and never commented. Just hoping and praying for the best outcome. I even have his prayer button on my blog. Its been there for so long. Keegan is so precious and I find it hard to have faith in a God who would do this to a mother while she begs for healing. My heart goes out to you and your family.

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  32. Beth,
    I got your blog link from Scarlett's web site. I am sorry to hear about Keegan . Hopefully there will be a miracle and keegan 's tumour will be gone. You and your family will be in my prayers.

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  33. Just saw the link posted by Brandi Wecks to your site. Although I have never met you or your beautiful baby Keegan, my heart hurts for you like you are a member of my family. I know there is nothing that can be said to ease your pain,especially from someone you have never met. But just know there is a mom in Michigan praying for your family and will continue to do so.

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  34. I am so sorry for your news. I will be thinking and praying for your family through this hard time. I pray that you can celebrate each day together and know that there is an immeasurable amount of love surrounding your family from people that you will never know. I am saddened for you but I know God has reasons we cannot comprehend.


    I believe in the sun even if it isn’t shining. I believe in love even when I am alone.
    I believe in God even when He is silent.

    ~World War II Refugee

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  35. You have no idea who I am. In fact, I've never read your blog before today. I saw it referenced from Starring Scarlett's blog. I am so, so, so sorry for what you're going through. Your beatiful boy deserves so much more. I wish I could do something to help make him better. All I can do is tell you that you and your son are in my thoughts and prayers.

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  36. I'm keeping you in my thoughts and prayers. When Scarlett's mother linked this, I was heartbroken for your little family. I live in Chicago - I know it's not too close, but if you need something from here, please don't hesitate to reach out to me.

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  37. In prayer for comfort in this unimaginably tough and sad time. God please be with this family, please.

    Hunter Wolfe
    C.O.L.E.’s Prayer Team
    www.colesfoundation.org

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  38. You do not know me, but my heart is breaking for you and your family right now. I want you to know that your son has touched many lives. He is so special and he will live on beyond weeks to months in every heart that he has touched in this journey. I want you to know that. I know it doesn't make things better but its all I have to offer.

    I hope your days are filled with smiles and laughter. I hope that the joy outweighs the grief. I cant even imagine how hard this must be but I hope for you guys these are your best days on Earth. You deserve for them to be! I hope that what I am saying makes sense because its hard to see through the tears. I will be keeping your family in my thoughts.

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