Today is the one year anniversary of Keegan's emergency shunt surgery (the first of many surgeries). Why such a big deal you may wonder? Well, this is the surgery that set the next month into motion with projectile vomiting, silent seizures and ultimately a life flight trip that saved his young life. The Shunt Story can be found HERE . So this past week has been rather hard never mind today and to top it off it is a yucky ucky day here in Evansville.
I think the next month will be difficult and just ask my family, friends and loved one to bear with me. A year ago our life starting spinning out of control and nothing has been the same since. A year ago Dr. Ackerman went into my sons brain for the first of three times. A year ago all we had to worry about was hydrocephalus which seemed HUGE at the time.
While I know I should be looking forward to the future and not at our past (why should we dwell on that stuff) it has changed me, it has changed Ry and how my whole family (extended included) views life and love. It has changed the simple mundane things into being accomplishments with everyday holding something new, exciting and extraordinary!
I have shed lots of tears this week, been pretty stressed out and someone I don't even recognize! But I handle stress in a weird way. I have kept up on my medicine and will continue to do so until after Keegan's MRI on May 12th. I have gotten on the treadmill EVERYDAY and done 3 miles. It helps me zone and forget about life for a little while.
So anyway I bet you want some updates.....
- PT is going well. He continues to want to stand. He hasn't quite got the hang of the leg moving to walk thing but I don't think it will be long.
- This week while student J and Mrs. P were working on crawling he started to pick his hands up on his own and try to move forward. This is HUGE since all he has been doing lately is army crawling-we will take it!
- During OT Mrs K is working on some oral motor skills. He likes to tongue his left cheek but does not cross mid line to the right with his tongue. So our goal is to get Mr. Tongue moving more to the right side. She accomplished that a handful of times this week in OT with some yogurt melts.