You know that feeling of dread when you get bad news? I have had the feeling to many times to count since September when Keegan was brought into this world. The most recent occuring this evening just as I was leaving work to go home for the day.
Keegan had a CT of his brain done today for what our Pedi thought was "excessive englargement" of his head in the past couple of months. I didn't really sweat it, we have had them done before and nothing really ever came of it; no fluid (water) on the brain just residual blood from the uterine stroke. We got there, got in fairly quickly, and had it done. He did such a great job staying still.
When the phone call came I knew it was probably the doctors office and when I heard the familure nurses voice on the phone, chipper as always, I knew everything would be okay. I was WAY wrong. She proceeded to let me know the CT found water on Keegan's brain; otherwise known as Hydrocephalus. She then told me that tomorrow (friday) morning she would be calling Dr. Walsh at Riley, our neurogenetic doctor, and ask him how he wants to proceed. She said they will ask if he would like to see Keegan sooner than his May 24th appointment and whether Dr. Walsh wants to refer us to a Pediatric Neruosurgeon or they should.
Before the conversation was even finished I started FREAKING out. I point blank asked Mary, our nurse, what this meant. I then had to rephrase because I know what Hyrocephalus means but what does it "mean." She said she would get with our Pedi and ask him. Are we dealing with Mental retardation, seizures, eating problems???I have sooooo many questions running through my head.
I know Dr. Crecelius will get back to us as soon as possiable but it doesn't seem fast enough. I want something to be done about this yesterday. You never want your kids to suffer and when they do you just want to be able to help and take that away. I can't do that for him, I would if I had the chance. He has only been in this world a short couple of months and had to deal with medical needs far beyond his years.
I will update when I know more. Please continue to pray for us, we could REALLY use it!