Sunday, August 28, 2011

Open Letter

This Blog is about Keegan and our life with its ups, downs, and everything in between. If you are an avid reader or just found us thank you for being a part of our life and supporting us. I have been stewing over this "Anonymous" comment for almost a week now and have just gotten to the point that I "think" I am cooled down enough to write an open letter to "Anonymous". If you don't know what I am talking about look at the first comment on this post. So here it goes.

Dear anonymous,

Unfortunately after an hour or so of research and numerous question to my blogger friends I stopped looking for your identity and started stewing in the cruel words you wrong on my blog, about my son and involving my family. I made a post of facebook about your cruel post which received 64 comments varying in support and the use of MANY 4 and 5 letter words about you.

(I don't even know if you are gonna read this post, and if you do too bad but I blocked anonymous post from here on out, so if you post, we will have to know your identity-kinda funny how one apple can ruin it for the rest huh).

Obviously you are not a parent and if you are may God bless your children for you lack of support, care, and the will to fight for what is best for them. Just by posting those few words people could learn a lot about you and the kind of person you are. I actually feel sorry for you anonymous because if you were placed in our situation kinda seems like you would miss out on a possibly great life for your child if you are willing to give up that quickly. What you may or may not realize as a parent is you will do ANYTHING for your child, and I mean A.N.Y.T.H.I.N.G, and that means going to the end of the world to make them happy and in our situation save a life.

What you don't know and many of my blog followers probably realize is I don't post every.single.detail about Keegans care plan and what choices we have and what we don't. Sometimes I do though, and when I do its not for you to judge nor anyone else, this is the place I come to tell OUR STORY, POST MY THOUGHTS, and LET OFF MY STEAM. Only my husband and myself along with our close family know what the walk we are walking and help in the decision making. Many families that I am close to with children that have cancer can sympathize, but since each case is individual and no one case is "worse" than the other. So they don't even know OUR walk.

Anonymous you have NO idea what you are talking about and have obviously never met my son. Every person my son has ever met is touched by him and his story. They are touched by his bright blue eyes and fall in love with him almost immediately. He is such a cool kid that if you did ever have the pleasure of meeting him I am sure you would realize just how special he is.

In closing I would like to make something perfectly, crystal clear. Keegan is not being put through hell. Proton Beam Radiation has minimal side effects and, as if its any of your business, our oncologist thinks it will actually save his life and rid him of this cancer. Shame on you for not knowing the whole story and blaming me for "putting my child through hell".  I will say extra prayers for you because there is this lady named Karma and she is a REAL bitch, I hope she visits you one day and realize just how bad simple words can make one feel.

Yours Truly,
Keegan's Momma Bear

PS-

18 comments:

  1. Good for you Beth! Spoken like a determined Momma of a very precious blue eyed boy who deserves every chance to live a life full of love. Don't let anonymous take anymore of your energy though. Anonymous doesn't deserve it. The rest of us have your back! = )

    Oh-I totally saw that pin on pinterest and thought of you!

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  2. Perfectly said beth! We are in tears as a family as we read That terrible comment from this coward. As a mom with a child with a disability I stand and we stand with you in support of every decision you all make as we know it cannot be easy and every one comes with a price. You all are the reason my husband and I go on every day and are less defeated daily by watching your strength and faith on god and hope for Keegans future. That is what we hold on to for Tori now living with 5 headaches 24/7 and recently fell and hurt her whole brain And again we are halted with her doing school and risk her not graduating on time but she still looks to god. Tori follows your story daily as it encourages her. It's like she has a silent connection to Keegan to keep u the fight for them both. Thank you for who you are. The best momI know!! And for being an encouragement and testimony we love you all!! Always in our prayers!! Hugs! The wright family

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  3. Oh my goodness. I literally cannot believe that someone actually wrote that about you. About a momma who would go to the end of the universe for her precious son. For HIS life. Listen, please don't even waste a single moment on stupid anonymous people.....I have no idea why this person even is reading your blog if they don't fully support you and love that beautiful boy of yours. I hope that you know that although many people who pray for Keegan are strangers (like myself) I truly have such love in my heart for him and your family and all that you are going through. Going through with such GRACE, I might add. Don't sweat anonymous hate and good for you for setting the record straight and standing up for you and your sweet boy! You are an amazing momma bear!

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  4. Damn straight! Do not let that foolish mess from that coward get you down. Stay strong. There are too many people praying for y'all and loving Keegan, for you to even give Anonymous another thought. BIG *hugs*

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  5. I don't know if I've ever commented before but I've followed your blog for quite a while now. I am fuming after reading that comment. I don't have kids but I would surely never judge someone for exhausting every effort to save their child's life. Who does that? I really just have no words for what should be said to Anonymous. You did a very nice job of being diplomatic in your response.

    Constantly keeping Keegan and your family in my thoughts.
    Best,
    Brooke

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  6. Beth, I know I don't have to defend your decisions because as you said no one but you and Ry know what's best for Keegan. But I DO have to tell you and any "anonymous" people reading this that when Abby was at her sickest her doctors encouraged us to take her off life support. That she would be a vegetable even if she did survive. I told them we'd let ABBY tell us when enough was enough. Well, she did-- I guess-- I mean, she's three now and yesterday read a book to me. Perfectly normal, perfectly healthy, and PERFECTLY happy. God bless you guys, sweetie, and I know it's hard but don't let the "little people" get you down. They don't know just how ignorant they are. Hugs.

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  7. i'm sorry that you had to deal with this on top of dealing with cancer as well. I look forward to every update always hoping that Keegan will kick this cancer to the curb once and for all.

    Wishing and hoping for the best.

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  8. Amen Beth the people that think they are SO so righteous and know all need the karma train tongue them in their ass.
    When my son was born I received a letter from my husbands sisters son telling me that if I had been righteous that my son would of been born with out all his defects.

    I am so mad some one could write that to you and feel the right to do so

    We love you and support you in the fight for the love of your life

    Heart hugs
    Ivy

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  9. Anonymous must not know that people DO BEAT CANCER! Keegan is a fighter and as his mother it is.your duty to give him what he needs to be able to fight! You are an AMAZING mother Beth! Keep on fighting for your baby boy! We pray for Keegan & your family daily!

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  10. Oh Beth...that person was obviously an ignorant buffoon...any parent worth anything would go to hell and back to save their child's life. People who know you irl or on the Internet know what a strong woman you are and know that you and your husband are dealing with things we can't even comprehend. Don't let the uneducated, worthless ramblings of a meaningless, insignificant spec get you down for long. We love, support and pray for you every day.

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  11. Well versed Honey. I love you and Keegan and will always be here for you.
    XOXO,
    Kee's Papa Bear.

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  12. Good for you Beth! How dare someone judge you for the path you are taking! What you face everyday, the decisions you have to make are so hard you dont need someone who does not know the whole story to chime in with negative thoughts. This person has no idea what it is like to have to make a decision that you know may cause your child some pain in the current moment but will allow them to have a better life in the long run. No parent should have to make that decision but those of us who have had to. always do it with our child's best interest at hand. I think about you and your family all the time and am always so proud of your strength and attitude.

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  13. Hi Beth,
    I totally missed this comment! How very sad that you had this on top of what you are going through. :(

    Anonymous,
    Every single life is precious in the sight of God. God loves Keegan so very much and I am so glad that He saw fit to bestow this beautiful child into Beth's family. A mother who would go to the ends of the earth for her son. He is well loved. There are many healthy children in this world that do not have this kind of love shown to them and even though they have health and material wealth they are hurting inside more than Keegan would ever know.
    Shame on you for saying such an unkind word to Beth. I too will pray that you will have a change of heart and apologize to Beth publicly since you hurt her publicly. If you are a Christian then you WILL do this for this is required of all Christians when shown they are wrong. If you are not a Christian then I hope and pray you come to know Christ and have a love and peace inside of you that you will never know unless you know Him.

    Beth,
    You ARE doing the right thing and I am so proud to follow you and pray for you on this journey. You are a fantastic mother and I am so glad that God saw fit to give you Keegan.

    Praying and praying,
    <><

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  14. So am I a bad Mom too because I gave birth to a baby with a heart defect and didn't choose to terminate him? He had two open heart surgeries before he was a year old. Now he's a happy healthy five year old that you can not tell a thing is wrong with him.

    Anonymous, You can kiss our asses. What are you trying to hide that you had to post Anonymous?

    Beth, You go girl!

    Hugs to you and yoru little man. Go Keegan Go!!!

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  15. Exactly! I had to block anonymous posters from my blog, too; I had someone comment how sad it was we were exploiting our daughter for money, and I just about lost it and deleted the whole thing. Keep fighting for Keegan. Luckily he got you and not some "anonymous" mom!

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  16. Well said! I am very sorry that a total stranger said something so awful on your blog. Keep doing exactly what you are doing and don't give that loser another thought. Please don't ever censor yourself or worry about what anyone on here might think, no one has had to make the decisions you have had to and so NO ONE has the right to criticize.

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  17. Beth, You are awesome. We had the same incident happen to us. People have no clue what we go through and you are right, each situation is different. Continuing to pray for Keegan and your family! Keep fighting!!!
    Love,
    April Ellie's Mommy

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  18. Beth,

    I'm going to go out on a limb here. I am the mother of a special needs child. She is 22 years old now. She has Trisomy 9p, Lennox-Gastaut seizure disorder, a CHD, along with other birth defects. That she has survived for 22 years amazes the doctors. While she is medically fragile, she is a very happy 22 y/o "toddler".

    Let me be clear in saying that I do not agree with the way Anonymous made the comment but I do understand the sentiment as it relates to some of our kids. This is something that I had to unexpectedly and painfully become aware of several months ago.

    My daughter was diagnosed with leukemia and I made the very tough decision not to treat her. That decision was, and still is very painful, but I know in my heart it was the right one...FOR US. I would never presume to know what is right for any other family.

    I'm only sharing this to say that maybe, Anonymous truly meant no harm. What they said was hurtful but I think it's more ignorance than cruelty. You are right...unless you've been in our shoes, you have no clue what it's like.

    I chose not to put my daughter through chemo because I knew she wouldn't understand and I want whatever days/months/years she has left to be happy. After 22 years, it's about quality, not quantity. I want her here for 22 more years but I know, in our case, it would have been selfish of me.

    Please know I am in no way attacking you. I can read the love you have for your son in every word and I know that any decision we make in love, for our children, is always a right one.

    I guess I just wanted to give you an alternative thought that leaned more toward stupid than cruel. My thoughts are with you and your family.

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