I love all of our doctors a Riley, they have come to be part of our family. They hurt when we hurt and they are celebrating when we celebrate. With that said, can I just make the announcement that our doctors were WRONG. This is not to rub it in their faces but to show you that you should not just take their word for it, the are just practicing. Trust your intuition and go with it. You know how I mentioned back here that we had an MRI and it showed the tumor had grown through the worst chemo regimen possible?
Well, I am here to tell you that MIRACLES do come true! On Tuesday August 17th my mom and I made the long journey to Indy for a 3 hour MRI that performed multiple kinds of scans. We then had an appointment with our Oncologist where they checked him out before he was to start radiation on September 2nd. I knew we wouldn't have answers that day but went home with butterflies in my stomach. Around 8 am on the 18th I got a call from our WONDERFUL neurosurgeon. She knew I was sitting on pins and needles and began to tell me the best news I have heard in a LONG time. She said it appears that the area under suspicion is not tumor at all. They are not quite sure what it is, it could be contused brain, dead tumor, or just something else very weird. She commented that this is the best news she has ever been able to give us and it was sooooo true-Our God is an Awesome God! Dr. Ackerman said most likely we would NOT do radiation and start chemo back up but that Dr. Shih would be calling me to discuss all this further.
About an hour later Dr. Shih called. You could tell he was very happy with the findings and basically in not so many words let us know that they compared acids from the "regular" brain to the area under suspicion, they were the same-if it was a tumor then you would see a higher acidity in the tumor region. The perfusion scan which showed the blood supply into the brain and surrounding area showed the exact same thing. Not increased blood supply to the area under suspicion.
Wednesday all the miracles and prayers my family and thousands around the country had been praying for finally came true. Instead of contacting HOSPICE and making funeral arrangements I am now looking forward to chemo, the stem cell transplant and getting his central line and g-tube out. We still have a long way to go but instead of thinking of the short amount of time we have left we have been given and new chance to watch him grow up!
If this post doesn't strike any other chords with you, let it show you that a) MIRACLES DO COME TRUE and b) Doctors are not god and only "Practice" medicine.