Frustrated-almost-BEYOND BELIEF

I know everyone wants updates on Keegan, and that post will come later tonight when I have time to sit down sort through all my thoughts, feelings and emotions of the past week. But right now I want to VENT on something that I don't think is right or fair. I just want to stress these are my opinions and mine only.

So Keegan is 21 months this month, almost 2 right? He has a life threatening disease-medulloblastoma right?!?! He has relapsed and hope upon hope and pray with all our heart the path that we are currently following will keep him cancer free for years to come But I do have a problem.

That problem is all the foundations out there, like a few you may or may not know, that grant wishes to sick and terminally ill children. They have age restrictions. For a nationwide one you have to be 2.5 which we wont reach until March of 2012. Another local wish organization you have to be 3.

I know there are age restrictions for a reason but the trips are for the families as much as they are for the children. They are memories to be made that in some cases are the only vacation memories a family has. I am very upset, made, and frustrated. I know my son would not enjoy Disney, he is not old enough, I completely agree, however; I have been thinking and I believe a Disney Cruise would be enjoyable by all. He could meet the characters, go to the beach and have fun on their private island. The memories made would be priceless yet unless I am LOADED I am unable to make those memories because he is "not old enough".

Ugh, I am just upset and want to cry, most families have a lifetime, we may not and that sucks!

Do I have smoke coming out of my ears?

Warning: This post is not a happy post, if you are looking for a pleasant puppy dogs and rainbows post please wait utnil tomorrow for Wordless Wednesday.

Now onto a very important topic that I am sure many of my readers will find intresting and very upsetting.
Backstory: My mother in law was fighting Breast Cancer back in '04, it was then that I turned to Susan G. Komen and their efforts to raise money to help my mother in law's case. I donated, walked, you name it I tried to do it in the name of Breast cancer and all the brave women fighting worldwide. With that said, it was brought to my attention by my friend over at The Sartins via The Layla Grace Foundation, some intresting information about The Susan G. Komen Foundation.

The article that Cassie shared, and thus has gone viral on facebook between a lot of my friends is this one.  It goes into great detail how the foundation (that is what we are going to refer to them as for the safe of typing it all out) has gone to extreme lengths to go after/sue small little mom and pop foundations that use "for the cure" in their title or activites.  According to this article on The Huffington Post dot com, the foundation has filed legal action against over a hundred  smaller entities that use the term in their heading, example: Kites for a Cure.  According to this article the foundation came after them hard and heavy. They were fortunate to have lawyers want to help with no charge and fought the foundation to win! (Good for them!!) However, they have to make sure that all there advertisement and such bears that it is for "lung cancer" so people don't think its associated with the foundation. Absolutely. Ridiculous! They can also never use the color pink in anything? But as someone quoted in the article adds, where is the line drawn, what if they use Carnation pink or Magenta for a specific purpose, will the war start all over?

Its also pointed out in the article that the money "the foundation" is using to pay for these big ticket lawyers is money that has been donated to the foundation for research purposes. Although they claim this is only a small percentage of the funds received, when I donate to a certain organization or cause I want to know that it is going for the better good, not to help destroy other charitable organizations.

I.am.livid! There is no other way to put it and I am not going stand for this. From now on, I am not going to particiate in any, I REPEAT any Foundation related events. I also vow to NOT purchase products that give percentages to The foundation i.e. yogurt, kotex and such. You should also be aware of this article. You be your own judge. But I am making a vow to myself and all the people fighting cancer worldwide, like Keegan, I WILL NO LONGER support The foundation, this is appaling and I am not going to stand for it!